In January, I posted a request on Facebook and Twitter for resources related to mental illness and academia. I had been contacted by a reader recently diagnosed with bipolar disorder, who was seeking information. The response to my request was greater than I expected, and many expressed a wish for a list of the resources I discovered. I eventually compiled such a list and posted it on the blog in this post, Mental Illness and the Academy. I also asked for guest posts on the subject. I feel it’s important and yet too often shrouded in secrecy and shame. Today’s post is the first guest post in the series. I expect at least one more. Thank you, reader, for your willingness to share.
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Disclaimer: Every experience with mental health / ill-health and graduate school is different. Diagnoses and graduate programmes vary but, beyond that, some people begin graduate school with well-known and managed conditions, while others have disruptive periodic episodes. Some, like me, are first diagnosed as graduate students and experience the two journeys in tandem.
Near the end of the first year of my PhD I got sick. First came bronchitis, and then came something a lot more frightening and much harder to understand. I didn’t have the vocabulary then, but I’d later come to know that I was experiencing panic attacks, dissociation, elevated anxiety and symptoms related to post traumatic stress. On the one hand I’d just won a major national scholarship and was receiving a lot of public recognition. On the other I was frequently terrified, incredibly forgetful, and easily confused. I would feel detached from my surroundings, sometimes for days, and then would sleep excessively to recover. Fortunately, my worst symptoms fell over that first summer, when I had limited responsibilities, and as far as I’m aware no one noticed.
After a few attempts, I was very lucky to find appropriate care and began the journey of managing my health. I was able to finish coursework on a regular schedule. I could pass for healthy even if it took a lot of effort to do so. I’m very aware that this is not an option that is available to everyone.
Graduate school is a mind game for anyone. We all know the daily feat of trying to motivate ourselves to keep going, to produce more, to be more competitive. To quote Dr. Seuss it is “a game that you play against you.” With a mental illness, it’s understandably more complicated. My brain’s abilities may vary, but as a person I’m still an over-achiever who isn’t satisfied with “good enough.” It’s hard to isolate precisely the impact of my mental health conditions on my academic life. Would I have finished faster, published more? Yes, undoubtedly yes. But how much more?
My experience is one that is rife with contradictions. I became an advocate around mental health before I got sick. I’m involved in campus-based mental health advocacy on campus but I’m also not open about my own situation in an academic context. I understand the problems that this entails – I’m not putting a face, my face, on mental illness. Why? Because I fear the stigma and I want to get a job. Am I shooting myself in the foot? Possibly. I wonder this when I consider why I didn’t pursue academic accommodations, and when I’m faced with an employment equity form with a job application that asks about mental health conditions. On the one hand, I think my situation isn’t severe enough to merit this, and these provisions perhaps weren’t intended for me. On the other hand, I do live with an ongoing health condition that I feel I can’t disclose professionally. As a result, I don’t receive any acknowledgement of that struggle. The decision to disclose is not a simple one.
My university has made significant strides towards acknowledging student challenges around mental health and clearly takes the issue very seriously. Where undergraduates may have a variety of services, however, these are often replaced at the graduate level by a single person – the supervisor. In a lot of ways this makes sense, as we work very closely. However, it can be daunting to discuss your mental health with the person who reviews your work, writes the letters that help start your career and who may also provide your funding. Additionally, counselling services are sometimes staffed by graduate students in psychology, and group counselling programs mix undergraduate and graduate students all of which can be pretty uncomfortable to a TAing grad student. Leave policies are rigid, and disability accommodations are oriented towards course work rather than thesis work. Even where services are available, unless they are specifically labelled and targeted to grad students, grad students also often assume that they are only for undergrads.
Now that I am nearing completion and on the job market, there are a few recommendations I’d make to myself in hindsight and to others in similar situations. Based on numerous conversations with other grad students with mental health conditions I also have some recommendations for departments and universities.
Students:
- Seek health care as soon as possible. There may be a waiting list and seeking care also provides a paper trail if you ever need to document your illness.
- Find out what resources exist on campus and what the provisions for leave (and what sort of documentation you might need) and disability services.
- Take leave when your symptoms are severe. This didn’t seem important to me in first year, but now that I’m running up against the clock having those 4 months would be helpful.
Departments:
- Cover mental health as part of your grad student orientation.
- Bring in campus-based resources as part of orientation if possible.
Universities:
- Make leave an accessible option. Policies that require leave to coincide precisely with term dates may be unrealistic for episodic illnesses. If possible, allow students to take leave and not lose all financial support (or health insurance) during that time.
- Consider having targeted grad student mental health services (ie specific therapy groups and expertise).
- Have personnel located outside of departments that can provide grad school, job and career advice (similar to undergraduate faculty-level advisors).
As for me, my journey is ongoing and I’m still aiming for an academic career. Alongside my degree, I’ve learned a lot from my experience with mental illness (and, I’m sure still have a lot more to learn). It has taught me about vulnerability, resilience and forgiveness and has shown me how fortunate I am to have the people in my life that I do. It has also given me both sensitivity and admiration for my own students who choose to disclose to me.
Thank you for this post. I had a very similar experience with an anxiety disorder in grad school. I’ve come to realize just how prevalent such mental health problems are for grad students. I was feeling very self-conscious about being on medication, and one of the profs commented to me ‘don’t worry, we’re ALL medicated’, which is a rather alarming statement about what it might be about the academic environment that fosters certain types of mental health issues.
Dear Guest and Karen,
I say again what I posted on the last piece. What about the ADA? We have a saying in the Disability Office, Do you want to work harder? or Smarter? Your comments and reasoning about not approaching the DSS office are common, based on false assumptions AND a form of denial. Everything we do is confidential, you do not need to provide any health information to your supervisor unless you choose, and sometimes that is good others it is bad. but let us help you with the decision. Nor do you have to wear a t-shirt like in the tv commercial with famous folk and their kids or siblings or neighbors.
As a DSS office one of the more common ways I meet students/staff is when they are in the middle of a crisis like failing out or being suspended or up against some rigid policy with a timeline or past extension. I can not help you with the past, only with the present if/when you come in a start the DSS procedure. When the shit hits the fan is not the time to turn to the ADA/504 regs, by then it is to late. Don’t be late!
Greg
This is an invaluable comment. Thank you, Greg.
Dear Greg,
Thank you for taking the time to write this comment. It is an important message. I am not fully familiar with the ADA as I am outside of the United States, but this sounds like very valuable information to make clearly available to grad students there.
My purpose in describing my difficulties around disclosure was not in any way to argue I made the right choice, but to shed some light on how this process can be a significant struggle.
Again, thank you for your comments.
thanks very much for posting this. it’s hard to find information about mental health in academia that goes beyond autobiography and is also helpful/empowering to other people (like me) with similar issues. even grad students lucky enough to have health insurance still have limited options for psychiatric care/medication management through our health plans. do faculty have the same problems? as a faculty member (let’s hope), will I also have to go to the health center for psychiatric care and meds, and not be able to apply insurance to a private psychiatrist?
thanks for your advice!
Dear Grad Student,
All universities and states differ as to available mental health care options for faculty, so, prior to graduation, be sure you have a plan-even if this means you must get your meds temporarily from a family physician, you must be prepared to manage your illness with or without the care of a psychiatrist. Mental health care services were not provided to faculty at my university; only to students. Prior to graduating, I learned that my new insurance would not cover mental health care, so I scheduled an appointment with a family physician, briefed him on my situation (I had been taking the same meds and dose for years and my illnesses were well under control), and asked if they would be willing to write prescriptions for me until I found mental health care services. Most cities have such services for people with low income or who have no insurance-ask your current mental health care professionals for help on this. I quickly found services and no longer had to rely on my family physician.
Best of luck!
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